2016 Rare Disease Day: Help us raise awareness

Here's a great example!

NORD’s Rare Disease Day is right around the corner on February 29th. A part of the Jack McGovern Coats Disease Foundation’s mission is to raise awareness and build a community of patient families to support one another. This year, Rare Disease Day’s theme puts the mic in our community’s hand: “Patient Voice” is the theme […]

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Doctor Interview: G. Baker Hubbard III, MD

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G. Baker Hubbard III, MD specializes in vitreoretinal surgery, and his practice includes both adult and pediatric vitreoretinal disorders. Dr. Hubbard’s primary research interest is in characterizing the clinical manifestations of pediatric retinal disorders and their treatment outcomes. He is a practicing Professor of Ophthalmology at the Emory University School of Medicine. You can reach him through […]

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Meet Megan Webber, Co-Founder of Know the Glow

Megan Weber and Ben

Here, at the Jack McGovern Coats’ Disease Foundation, we seek to grow our community and connect with people who are aligned with our mission of curing Coats’ Disease and other retinal disease. Megan Webber is one of those key people. She was introduced to Children’s Hospital Los Angeles in September of 2009 when her second […]

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Luke’s Story & His Enucleation Brochure


“I was diagnosed with Coats’ disease when I was 5. Soon after, I developed pressure buildup to such a painful degree that removal of my eye, or enucleation, was necessary. The thought of enucleation was much worse than the reality. For me, the surgery was the answer to the end of horrific pain. When I […]

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