2016 Rare Disease Day: Help us raise awareness

Here's a great example!

NORD’s Rare Disease Day is right around the corner on February 29th. A part of the Jack McGovern Coats Disease Foundation’s mission is to raise awareness and build a community of patient families to support one another. This year, Rare Disease Day’s theme puts the mic in our community’s hand: “Patient Voice” is the theme […]

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Event recap: 9th annual golf tournament

2015 Golf Tournament-8

We came, we saw, we golfed. Thank you to all our donors, golfers, auction bidders, and dinner guests who came to support the Jack McGovern Coats Disease Foundation at our 9th annual golf tournament in August. We raised thousands of dollars, which will go towards research efforts like that of our Genentech partnership. You are […]

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Educating Photographers at the WPPI Conference

WPPI

We partnered with the Know The Glow Foundation on a marketing campaign through the Wedding & Portrait Photographers International (WPPI) Conference and Expo in Las Vegas, Nevada in  March 2015.  With nearly 13,000 attendees and 300 exhibitors, this effort was meant to reach a broad but targeted audience of professional photographers with information about The Glow and […]

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Event Recap: 8th annual golf tournament to benefit Coats Disease research

IMG_7494

Thanks to all the support of our donors and golfers, this year was our 8th annual golf tournament and we raised over $50,000, making it one of our most successful events to date. Your support allowed us to fund the first of its kind study on the genetics behind Coats Disease led by the doctors of biotech giant Genentech. Missed […]

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