2015 Rare Disease Day


Eurodis, the voice of Rare Disease in Europe, marks the last day of February of each year as “Rare Disease Awareness Day”. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. Coats Disease impacts patients lives in a […]

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Genentech Study: Uncovering the genetics of Coats Disease


  We have very exciting news. With the help of some amazing and caring Retina Specialists, as well as the tireless efforts of our Foundation, Genentech, a member of the Roche Group, has launched a collaborative project to begin to understand the genetics underlying Coats’ Disease. Several Retina practices across the country (specifically in San […]

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Facebook Photo Helps Spot Girl’s Coats’ Disease


Recently, Coats Disease has received some national attention. Good Morning America, the NY Daily News, and ABC News all shared the story of a little girl who discovered a diagnosis of Coats Disease through a Facebook photo that her mom posted. The preverbal “glow” that appeared when the camera flashed on the little girl’s eye […]

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Buy Coats Disease Foundation T-shirts!


If you’ve ever wanted to purchase some Jack McGovern Coats Disease Foundation items, now you can! We have just launched our Zazzle store. For every product, our foundation will receive a royalty from Zazzle. The rest of the costs go towards production of your item. Have an idea for an item to sell on our […]

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Interview with Jack McGovern

Jack McGovern

We are very proud of our very own Jack McGovern. He has never let Coats Disease slow him down or get in the way of living the life of a teenage boy. Recently, Jack was featured on local sport show Cal-High Sports where he discusses his feelings about Coats disease and how he hasn’t let […]

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