Alison Comer

Position: Board Member

Alison Comer is a proud Colorado Native. As a Data Analyst for Denver Public Schools, she is responsible for accurate reporting of all district student data to the Colorado Department of Education. Before joining DPS Alison worked at her alma mater, University of Northern Colorado, for the Alumni Foundation and Donor Relations office as an Annual Giving Manager.

Alison is the proud parent of Mason, who is four years old and is living with Coats’ Disease. She and Mason were first introduced to the Jack McGovern Coats’ Disease Foundation in 2018 when Alison pushed Mason’s pediatrician to schedule extensive hearing and vision tests at Children’s Hospital Colorado. This led to Mason’s first surgery and the correct diagnosis of Coats’ Disease. In the few years since that initial diagnosis, Mason has had eleven surgeries. Alison has benefitted from the support of the Foundation and she has grown very involved in the Foundation’s work as a member of the Coats’ Ambassador Network.

Alison is passionate about event planning, relationship building, and raising awareness of Coats’ Disease. She works to educate folks in her immediate community and at the state level through outreach to legislators. Through the Coats’ Ambassador Network, she supports patients and their families worldwide. She has found her true passion in the mission of the Foundation. 

Alison is overjoyed to be a part of the Foundation’s Board, as she knows the importance of the information, comfort, and support provided to patients and their families, in what are often very dark days. She looks forward to the day when the Foundation’s work will lead to a cure for Coats’ Disease.

FAQ

At the Jack McGovern Coats’ Disease Foundation, we are often contacted by anxious parents or patients who are seeking information after receiving a diagnosis of Coats’ Disease. The questions below are provided as a resource to assist you as you and your doctor decide the best approach for treatment. These questions do not constitute any form of medical advice or diagnosis. Each patient is unique. An experienced retinal specialist who has examined the patient is the best source of information for diagnosis and treatment. We always recommend getting a second opinion.

Questions to Ask Your Doctor (Download PDF)

  • Ahead of any treatments or procedures, it is important to ask yourself and the doctor the following questions:

    • How do you know that this is Coats’ Disease?

    • Has your doctor treated other patients with Coats’ Disease?

    • Have you sought a second opinion? If not, please consult our Doctor Directory for knowledgeable doctors in your area.

    • What Stage of Coats’ Disease is he/she in?

    • Will his/her vision get worse over time?

    • Will the eye have pain?

    • Will his/her eye start to turn out? Is muscle corrective surgery an option?

    • Are cataracts likely?

    • How likely is glaucoma? (due to retinal detachment)

    • Is there calcification?

    • What is the anticipated disease progression?

    • Is there a thorough vision exam available?

    • Where is the vision affected? (central/peripheral/distance)

    • Does he/she have depth perception? (3D visibility)

    • What about the non-Coats’ eye?

    • To what extent is his/her vision affected?

    • Will we be able to use this as a baseline to measure progress/decline?

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