Scott McCrady
Scott has been a member of CAN since its inception and has brought to life one of our newest endeavors, the Coats'-to-Coats' Mentor Program. Scott's ideas are endless and his humor is one of the best parts of the CAN meetings. We are so thankful to Scott's leadership and volunteerism!
We caught up with Scott to learn more about him and why the Coats' Ambassador Network is important to him...
𝐖𝐡𝐚𝐭 𝐢𝐬 𝐲𝐨𝐮𝐫 𝐜𝐨𝐧𝐧𝐞𝐜𝐭𝐢𝐨𝐧 𝐭𝐨 𝐂𝐨𝐚𝐭𝐬’ 𝐃𝐢𝐬𝐞𝐚𝐬𝐞?
I am a Coats' Patient. I was diagnosed with Coats’ disease when I was 5 years old when I couldn’t pass my elementary school eye exam.
𝐖𝐡𝐲 𝐝𝐢𝐝 𝐲𝐨𝐮 𝐣𝐨𝐢𝐧 𝐭𝐡𝐞 𝐂𝐨𝐚𝐭𝐬' 𝐀𝐦𝐛𝐚𝐬𝐬𝐚𝐝𝐨𝐫 𝐍𝐞𝐭𝐰𝐨𝐫𝐤 (𝐂𝐀𝐍)?
I joined the CAN group to help families and patients realize that this disease should never hold them back from doing the things that make them happy. I want to share my stories and my life with the world.
𝐋𝐨𝐨𝐤𝐢𝐧𝐠 𝐚𝐡𝐞𝐚𝐝, 𝐰𝐡𝐚𝐭 𝐚𝐫𝐞 𝐲𝐨𝐮𝐫 𝐡𝐨𝐩𝐞𝐬 𝐟𝐨𝐫 𝐂𝐀𝐍?
My hope for CAN is to provide valuable resources to families and patients to get the support they need for the future and to show Coats' is something to be proud of and not hide from.
𝐖𝐡𝐚𝐭 𝐤𝐢𝐧𝐝𝐬 𝐨𝐟 𝐭𝐡𝐢𝐧𝐠𝐬 (𝐰𝐨𝐫𝐤 𝐚𝐧𝐝/𝐨𝐫 𝐡𝐨𝐛𝐛𝐢𝐞𝐬) 𝐝𝐨 𝐲𝐨𝐮 𝐝𝐨 𝐰𝐡𝐞𝐧 𝐲𝐨𝐮 𝐚𝐫𝐞 𝐧𝐨𝐭 𝐯𝐨𝐥𝐮𝐧𝐭𝐞𝐞𝐫𝐢𝐧𝐠 𝐭𝐨 𝐫𝐚𝐢𝐬𝐞 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬 𝐨𝐟 𝐂𝐨𝐚𝐭𝐬’?
I am an active skier, golfer, and swimmer for exercise but love playing some softball. I enjoy exploring the food scene around Colorado and in my travels overseas for work. I love traveling and exploring new cultures, history, and architecture.
𝐖𝐡𝐨 𝐢𝐧𝐬𝐩𝐢𝐫𝐞𝐬 𝐲𝐨𝐮?
I am inspired by my brother, mom, and late father to live life to the fullest and never let anything hold you back. They have always been supportive and even when times get tough with a rare disease, they inspired me to never let it hold me back.
𝐖𝐡𝐚𝐭’𝐬 𝐬𝐨𝐦𝐞𝐭𝐡𝐢𝐧𝐠 𝐚𝐛𝐨𝐮𝐭 𝐲𝐨𝐮 𝐭𝐡𝐚𝐭 𝐧𝐨𝐭 𝐦𝐚𝐧𝐲 𝐩𝐞𝐨𝐩𝐥𝐞 𝐤𝐧𝐨𝐰?
I travel around the world for work. I have been to five out of the seven continents, visiting more than 12 countries and counting!
𝐃𝐨 𝐲𝐨𝐮 𝐡𝐚𝐯𝐞 𝐚 𝐦𝐞𝐬𝐬𝐚𝐠𝐞 𝐲𝐨𝐮’𝐝 𝐥𝐢𝐤𝐞 𝐭𝐨 𝐬𝐡𝐚𝐫𝐞 𝐰𝐢𝐭𝐡 𝐂𝐨𝐚𝐭𝐬’ 𝐩𝐚𝐭𝐢𝐞𝐧𝐭𝐬?
Just because you have this rare disease you should never hide it or let it define you.
