Negar Souza

Position: Chair

Mrs. Souza is a Realtor with Red Oak Realty in Berkeley and possesses more than 15 years of real estate and interior design experience focusing primarily on the East Bay Area. Negar is ranked in the top 5% of agents in the entire East Bay by volume and is now a Certified Residential Specialist, CRS®, a designation given to only the top 3% of all agents nationwide. She is also a designated Senior Real Estate Specialist, SRES®, offering expertise to buyers and sellers who are 55 or older.

Mrs. Souza brings a Coats’ parent’s perspective to her Director role as well as extensive volunteer experience within her community. She served on the Step One School board for 10 years in charge of development and volunteer outreach and on the boards of her local public schools, where she focused on fundraising activities. She also helped create and volunteered with the Madera education foundation and volunteered and served as a board member for the Albany Berkeley Girls softball league.

Negar received her BA in Interior Architectureand Design from San Francisco State University; she became a licensed real estate agent in 2005. Negar resides in the El Cerrito Hills with her husband and three children. Her favorite role is being a mom and helping her children become incredible human beings in an ever-changing world.

FAQ

At the Jack McGovern Coats’ Disease Foundation, we are often contacted by anxious parents or patients who are seeking information after receiving a diagnosis of Coats’ Disease. The questions below are provided as a resource to assist you as you and your doctor decide the best approach for treatment. These questions do not constitute any form of medical advice or diagnosis. Each patient is unique. An experienced retinal specialist who has examined the patient is the best source of information for diagnosis and treatment. We always recommend getting a second opinion.

Questions to Ask Your Doctor (Download PDF)

Ahead of any treatments or procedures, it is important to ask yourself and the doctor the following questions:
- How do you know that this is Coats’ Disease?
- Has your doctor treated other patients with Coats’ Disease?
- Have you sought a second opinion? If not, please consult our Doctor Directory for knowledgeable doctors in your area.
- What Stage of Coats’ Disease is he/she in?
- Will his/her vision get worse over time?
- Will the eye have pain?
- Will his/her eye start to turn out? Is muscle corrective surgery an option?
- Are cataracts likely?
- How likely is glaucoma? (due to retinal detachment)
- Is there calcification?
- What is the anticipated disease progression?
- Is there a thorough vision exam available?
- Where is the vision affected? (central/peripheral/distance)
- Does he/she have depth perception? (3D visibility)
- What about the non-Coats’ eye?
- To what extent is his/her vision affected?
- Will we be able to use this as a baseline to measure progress/decline?