Sherri Van Everen, PharmD

REGENXBIO, Vice President of Clinical Development, Ophthalmology

Location: Rockville, MD

Website: https://regenxbio.com/home/

Sherri has been in Ophthalmology research for more than 20 years and was instrumental in helping initiate the Jack McGovern Coats’ Disease Foundation's collaboration with Genentech. Currently, she is the Vice President of Clinical Development, Ophthalmology for REGENXBIO developing retina gene therapies for patients with unmet needs.

Prior to joining REGENXBIO, Dr. Van Everen worked in drug development for Avalanche Biotechnologies, Genentech, and Eli Lilly and Company. Her experience has included roles in clinical development, medical affairs, outcomes research, and health economics. Her therapeutic experience includes cell and gene therapy, Retina, Ophthalmology, and Critical Care. 

Sherri joined the Foundation's Board in 2016 and played a major role in the Foundation’s scientific initiatives, including establishing the patient registry and supporting additional research collaborations in Coats’ Disease. She has served on the Scientific Advisory Board since 2019. 

FAQ

At the Jack McGovern Coats’ Disease Foundation, we are often contacted by anxious parents or patients who are seeking information after receiving a diagnosis of Coats’ Disease. The questions below are provided as a resource to assist you as you and your doctor decide the best approach for treatment. These questions do not constitute any form of medical advice or diagnosis. Each patient is unique. An experienced retinal specialist who has examined the patient is the best source of information for diagnosis and treatment. We always recommend getting a second opinion.

Questions to Ask Your Doctor (Download PDF)

  • Ahead of any treatments or procedures, it is important to ask yourself and the doctor the following questions:

    • How do you know that this is Coats’ Disease?

    • Has your doctor treated other patients with Coats’ Disease?

    • Have you sought a second opinion? If not, please consult our Doctor Directory for knowledgeable doctors in your area.

    • What Stage of Coats’ Disease is he/she in?

    • Will his/her vision get worse over time?

    • Will the eye have pain?

    • Will his/her eye start to turn out? Is muscle corrective surgery an option?

    • Are cataracts likely?

    • How likely is glaucoma? (due to retinal detachment)

    • Is there calcification?

    • What is the anticipated disease progression?

    • Is there a thorough vision exam available?

    • Where is the vision affected? (central/peripheral/distance)

    • Does he/she have depth perception? (3D visibility)

    • What about the non-Coats’ eye?

    • To what extent is his/her vision affected?

    • Will we be able to use this as a baseline to measure progress/decline?

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