Lavesha Owens
Lavesha is a relatively new member of the Jack McGovern Coats' Disease Foundation's Coats' Ambassador Network. She hit the ground running, however, with her efforts making an immediate impact by contributing to the success of Notes for Coats' and offering valuable input during meetings.
We caught up with Lavesha to learn more about her and why the Coats' Ambassador Network is important to her...
𝐖𝐡𝐚𝐭 𝐢𝐬 𝐲𝐨𝐮𝐫 𝐜𝐨𝐧𝐧𝐞𝐜𝐭𝐢𝐨𝐧 𝐭𝐨 𝐂𝐨𝐚𝐭𝐬’ 𝐃𝐢𝐬𝐞𝐚𝐬𝐞?
My son, Aaron, was diagnosed with Coats' Disease in 1994.
𝐖𝐡𝐲 𝐝𝐢𝐝 𝐲𝐨𝐮 𝐣𝐨𝐢𝐧 𝐂𝐀𝐍?
I joined CAN to support and engage with other families experiencing Coats' Disease.
𝐋𝐨𝐨𝐤𝐢𝐧𝐠 𝐚𝐡𝐞𝐚𝐝, 𝐰𝐡𝐚𝐭 𝐚𝐫𝐞 𝐲𝐨𝐮𝐫 𝐡𝐨𝐩𝐞𝐬 𝐟𝐨𝐫 𝐂𝐀𝐍?
For the medical field to call more attention to the experiences and needs of Coats' patients. Also to fund more research towards this disease.
𝐋𝐨𝐨𝐤𝐢𝐧𝐠 𝐚𝐡𝐞𝐚𝐝, 𝐰𝐡𝐚𝐭 𝐚𝐫𝐞 𝐲𝐨𝐮𝐫 𝐡𝐨𝐩𝐞𝐬 𝐟𝐨𝐫 𝐂𝐀𝐍?
For the medical field to call more attention to the experiences and needs of Coats' patients. Also to fund more research towards this disease.
𝐖𝐡𝐚𝐭 𝐤𝐢𝐧𝐝𝐬 𝐨𝐟 𝐭𝐡𝐢𝐧𝐠𝐬 𝐝𝐨 𝐲𝐨𝐮 𝐝𝐨 𝐰𝐡𝐞𝐧 𝐲𝐨𝐮 𝐚𝐫𝐞 𝐧𝐨𝐭 𝐯𝐨𝐥𝐮𝐧𝐭𝐞𝐞𝐫𝐢𝐧𝐠 𝐭𝐨 𝐫𝐚𝐢𝐬𝐞 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬 𝐨𝐟 𝐂𝐨𝐚𝐭𝐬’?
My food truck and church activities.
𝐖𝐡𝐨 𝐢𝐧𝐬𝐩𝐢𝐫𝐞𝐬 𝐲𝐨𝐮?
My son, Aaron. While he has Coats' Disease and epilepsy, he still works full time and is devoted to Gods' kingdom.
𝐖𝐡𝐚𝐭’𝐬 𝐬𝐨𝐦𝐞𝐭𝐡𝐢𝐧𝐠 𝐚𝐛𝐨𝐮𝐭 𝐲𝐨𝐮 𝐭𝐡𝐚𝐭 𝐧𝐨𝐭 𝐦𝐚𝐧𝐲 𝐩𝐞𝐨𝐩𝐥𝐞 𝐤𝐧𝐨𝐰?
I wish I could split myself into two, thus having more time to advocate for Coats' Disease!
𝐃𝐨 𝐲𝐨𝐮 𝐡𝐚𝐯𝐞 𝐚 𝐦𝐞𝐬𝐬𝐚𝐠𝐞 𝐲𝐨𝐮’𝐝 𝐥𝐢𝐤𝐞 𝐭𝐨 𝐬𝐡𝐚𝐫𝐞 𝐰𝐢𝐭𝐡 𝐂𝐨𝐚𝐭𝐬’ 𝐩𝐚𝐭𝐢𝐞𝐧𝐭𝐬?
Yes - Coats' Disease can be a stumbling block, but it also is special. It invites you into a diverse group of loving, determined people, all fighting for such a lovely cause. I’m blessed to be a member.
