What is CAN?
The Coats’ Ambassador Network (CAN) is a group of geographically diverse volunteers comprised of patients, parents, spouses, family members, friends, and supporters. The goals of the CAN are to raise awareness of Coats’ Disease in their communities, raise funds in their communities for research to find a cure, and support other patients and their loved ones so that no one travels the Coats’ journey alone.
Here are a few examples of how current CAN members are helping:
Host patient meetups online or at a local Coats’ specialists’ offices, parks, etc.
Communicate with and support fellow Coats’ patients and their loved ones who need to talk to someone who simply understands.
Innovate to fundraise – create locally focused fundraisers for Coats’ families and friends to participate in raising funds to support the Foundation’s research efforts.
Participate in brainstorming meetings to identify key outreach opportunities and strategies to spread awareness of Coats’ Disease and support patients and families.
Use your own social media to spread awareness and help promote Foundation events in your local communities.
How can you get involved?
There are many ways to become involved, depending upon your available time and your interests! Members contribute as often and in whatever capacity they can. We do encourage all members to attend quarterly meetings if they are able.
If you are interested in joining CAN or learning more, please let us know by completing the CAN Interest Form!
Drs. Hartnett, Vajzovic, and Lee, members of our Scientific Advisory Board, share their expertise during an informative Q&A session. Their insights provided participants with a deeper understanding of Coats’ Disease and current research efforts.
Find a Virtual Meet-up and connect with others!
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